How long it took.
How many years from your first symptoms to diagnosis? How many GPs, A&E trips, or dismissals along the way? If you're still undiagnosed, say that that's the story too.
One phone. One take. Thirty seconds. No filters, no scripts, no makeup if you don't want. Raw is the point, that's what cuts through.
How many years from your first symptoms to diagnosis? How many GPs, A&E trips, or dismissals along the way? If you're still undiagnosed, say that that's the story too.
What has it cost you? Work missed, relationships strained, plans cancelled, fertility, mental health. Be honest about the suffering that's what makes people listen.
[0–5s] "Hi, I'm Sarah. I'm 29 and I have endometriosis."
[5–15s] "It took 11 years to be diagnosed. Eleven years of being told period pain is normal, that I was exaggerating, that it was in my head."
[15–25s] "I've missed weddings. I've thrown up from pain at work. I had to leave a job I loved because no one believed me."
[25–30s] "I'm UNHEARD no more. Listen to women."
To keep all creators consistent, follow this simple structure for your 30-second clip.
“It took me X years to be diagnosed.
I lost [something personal] to endometriosis.
It has [spread/impacted] my [body/life].
I am still waiting for [treatment/surgery/support].
PAUSE
I want a one-stop endo clinic / better treatment options / to be heard. Claim what you want
#UNHEARD #listenToWomen #hearourstories”
Video isn't for everyone — pain flares, energy, anonymity, family who don't know. Use this template for a single text post or a 4-slide carousel. Drop it into Canva, Instagram's text post tool, or screenshot the mockup below as a starting point.
I waited [X] years for a diagnosis. What I was told instead: "It's just bad periods." "You're too young." "It's all in your head." On a bad day, my pain is [X]/10. It stops me from [work / sleep / leaving the house]. What I want from the UK government: — Faster diagnosis — A one-stop endo clinic in every city — Women's health conditions on QOF funding I am UNHEARD no more. Tag @endoawarenessnorth and @jamesmurray_ldn #UNHEARD #NoToMedicalMisogony #EndometriosisDoesntWait #ListenToWomen #womenshealth #endometriosis #womenshealthmatters #hearourstories #endosilence
Fill the brackets with your own numbers and words. Share only what you're comfortable with.
Upload to Instagram or your platform of choice. Tag @endoawarenessnorth so we can amplify you.
Tag @jamesmurray_ldn, the current UK Health Secretary, in your posts, alongside these advocates, so they see the scale of this crisis. Real voices, real stories, real urgency.